The great and powerful that is, not the country. If I went to see Oz The Great and Powerful I might ask for more than a brain or a heart. I might ask for a new body and this would include the brain.
Today I woke around 7am after eight hours of sleep miraculously provided by medication. I had a bath and I washed my hair. I put on clothes. Nothing worth showing here, I am nowhere near that yet but jeans are a step up from pyjamas or sweatpants. I spent the day on the sofa instead of the bed and I would estimate that fifty percent of that time was in sitting up. I prepared three meals for myself and two cups of tea. I read for awhile and although I often had to re-read whole paragraphs and even whole pages, it is progress to have been reading. My headache was milder than it has been lately. The other aches were mild today too. My lymph nodes have been generally calm and not detectably swollen. By the time I had finished my bath it felt as though I had just done a workout designed for achieving a whole body of steel. Why am I telling you this?
In general I am not a complainer. I live with a chronic illness but it is my intention to enjoy the life that I have and not waste time or energy longing for another one. It is also my goal to contribute to a public understanding of the medical condition known as Myalgic Encephalomyelitis. It is this condition that I live with. I am less afflicted than some, more so than others. According to my doctor I have the worst case he has ever personally known but then this is a small town. My general condition is considered to be an average case most of the time. It varies. There are remissions and relapses. It can vary from day to day and within a day. I have had relapses that were lengthy but mostly I experience what I call 'crashes'. These are sort of mini relapses. Mini, by my definition, is less than two months. I have been struggling for a month now, ever since picking up a mild cold.
And yes, it is a very mild cold. I still seem to have it after about a month but the symptoms are barely noticeable to another person. It is not really the cold itself but how my body reacts to having a virus that is extraordinary. It knocks the stuffing out of me, as my mother says. In addition to this little bit of 'woe is me', my attempt here is to reach out to any others suffering from this illness and to let them know that life goes on, that relapses happen but one overcomes eventually, to offer up a tiny bit of validation, I hope, for an illness that was for so long ignored, denied and ridiculed (yuppy flu), in addition to all of that, I am offering up my regrets for not visiting the blogs I love to visit. As I have already noted, reading is a challenge, though spewing out my own thoughts is not. My thoughts come as readily as breathing, in fully formed sentences and sometimes paragraphs. I kid you not. My own thoughts that is. Comprehending others is a different matter.
There is an aspect of mental impairment to this illness. To some degree it is the impairment that comes with fatigue, but this is a neurological illness, one which according to my research involves vastly reduced blood flow to all areas of the body. I suspect that if I did not have this illness I would be a genius and a super athlete and it would be unkind of you to disillusion me.
I am offering up some more of my writing. It is not recently done, but a another chapter from what is currently around fourteen of them. I write feverishly or not at all when I write fiction. Although it has little to do with my original topic, and thus not a writing example to impress any English teacher, I will conclude with a thank you. Thank you to all the amazing people I have met who create interesting, creative and unique blogs which I enjoy reading, thank you to those who read mine and take the time to comment. Thank you to those who show up and read but stay silent and anonymous. It is amazing to me to know you are there, amazing how this blogging thing reaches around the world.
If I have done it correctly, this link here should take you to the writing page. Otherwise the link is on the top right corner of the blog under Pages and titled Scribblings and Other Words.
There are many sources of information online, some more credible or up to date than others. Today I am linking to this one in case it is of any use to anybody, though it is not generally difficult to do a google search for ME.
And I found this video series enormously affirming and thus helpful. The link should take you to the first in the series called Get Well From ME